SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Brianna age 7 from Kilkenny
Brianna is currently waiting f
or urgent spinal surgery.
She is also waiting for further orthopaedic (leg) surgery.
Unsuccessful urology surgery has to be revised. Kidneys at risk, still waiting for a date for this urgent revision.
Brianna has had to present at emergency department suffering from complications arising from kidney issues.
Has not been seen for an "annual" ophthalmology appointment for the past 4 years.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group