SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Ava age 11 from Dublin


  • Ava has not had her "annual" Spina bifida multidisciplinary team (MDT) clinic since 2019.
  • She is on the waiting list for urgent orthopaedic surgery since June 2020.
  • Ava has asked mum on several occasions "When am I getting my surgery to fix my feet?"
  • She enjoys playing with friends, loves school and Youtube.
  • Her story has been covered by local media, Ava has been forgotten about​
  • Dublin parents slam 'disgraceful' waiting lists for children's spina bifida surgery
  • RTÉ news recently covered Ava's story
 


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