SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Alex aged 11 from Kilkenny
Alex waited 2 years for "annual" Spina bifida multidisciplinary team (MDT) clinic.
Waited 2 years to see Consultant Urologist.
Significant concerns around postural management and we are awaiting assessment for a new chair.
Loves sports and being outdoors.
Loves arts and crafts.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group