SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Alex aged 11 from Kilkenny

  • Alex waited 2 years for "annual" Spina bifida multidisciplinary team (MDT) clinic.
  • ​ Waited 2 years to see Consultant Urologist.
  • Significant concerns around postural management and we are awaiting assessment for a new chair. 
  • Loves sports and being outdoors.
  • Loves arts and crafts. 
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