SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Harvey age 6 from Dublin

  • Currently ​waiting for urgent orthopaedic review. Harvey has severe scoliosis with early onset chest wall disease (rib cage crushing his lungs) diagnosed at 1 year old.
  • Due to the impact on his lungs, he has had recurrent pneumonia infections requiring hospitalisation.
  • Both hips are currently dislocated and both knees are fixed flexed and unable to straighten.
  • Waiting 2 years for 2 urology procedures at Children's Health Ireland (CHI) Temple Street.
  • Requires a moulded and supportive seat for his wheelchair to help slow the progression of his scoliosis. His parents had to privately fund a wheelchair that fit him correctly, however, they could not get a moulded seat and he has had to go without one for the last 3 years.
  • Harvey loves Paw Patrol, horse riding, and school.
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