SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Had orthopaedic surgery in 2021 after waiting 3 years.
Ended up having complications and required extra surgery, endured months of extreme pain and long hospital stays which have had an impact on her mental health.
Is an excellent wheelchair basketball player, unfortunately due to her mental health struggles she has stopped playing.
Now linked in with psychology.
Waiting 2 years with chronic headaches for intracranial pressure (ICP) monitoring to rule out the need for shunt surgery, this is scheduled for January 2022.
Last seen in the "annual" Spina bifida multidisciplinary team (MDT) clinic 2 years ago.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group