SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Madison age 6 from the Louth/Meath border
2 years waiting on urgent hip surgery and leg lengthening surgery.
Struggled to stand on two feet due to difference in leg length now unable to stand.
Has not been seen by urology in over 2 years.
Waiting over 2 years for "annual" Spina bifida multidisciplinary team (MDT) clinic.
Unable to wear her orthotics (leg supports) due to pressure sores.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group