Madison age 6 from the Louth/Meath border

• 2 years waiting on urgent hip surgery and leg lengthening surgery.
• Struggled to stand on two feet due to difference in leg length now unable to stand.
• Has not been seen by urology in over 2 years.
• Waiting over 2 years for "annual" Spina bifida multidisciplinary team (MDT) clinic.
• Unable to wear her orthotics (leg supports) due to pressure sores.​