SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Paddy age 12 from Galway
Currently waiting on urgent scoliosis surgery.
Waiting on orthopaedic day surgery.
Losing the ability to self propel his wheelchair.
He was seen at the Spina bifida multidisciplinary team (MDT) clinic in 2021 but was waiting over 2 years prior to that.
Enjoys playing wheelchair basketball, however this is now impacted due to delays in his surgical intervention.
Local media have given front page coverage to Paddy's story
Galway boy’s Christmas plea for surgery to help him live his best life
"Children living with spina bifida in Ireland have been known to wait up to four years for surgery, with many facing health deterioration, amputation, and organ failure as a result of the long wait for treatment"
Spina Bifida & Hydrocephalus Paediatric Advocacy Group