SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Paddy age 12 from Galway

  • Currently waiting on urgent scoliosis surgery.
  • Waiting on orthopaedic day surgery.
  • Losing the ability to self propel his wheelchair.
  • He was seen at the Spina bifida multidisciplinary team (MDT) clinic in 2021 but was waiting over 2 years prior to that.
  • Enjoys playing wheelchair basketball, however this is now impacted due to delays in his surgical intervention.
  • Local media have given front page coverage to Paddy's story Galway boy’s Christmas plea for surgery to help him live his best life,
  • "Children living with spina bifida in Ireland have been known to wait up to four years for surgery, with many facing health deterioration, amputation, and organ failure as a result of the long wait for treatment"
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