SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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James Thomas age 5 from Dublin

  • Waiting 2.5 years for his "annual" Spina bifida multidisciplinary team (MDT) clinic.
  •  Hip and knee contractures and dorsiflexion in ankles but no physiotherapy since February 2020.
  • Has had to pay privately for orthotics and wheelchair due to lack of community services.
  • Due urodynamics (X-ray to measure bladder function) 2 years ago however not considered a priority. 
  • Attends urology privately due to public waiting times.
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