SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Home-maintenance
Redline
James Thomas age 5 from Dublin
Waiting 2.5 years for his "annual" Spina bifida multidisciplinary team (MDT) clinic.
Hip and knee contractures and dorsiflexion in ankles but no physiotherapy since February 2020.
Has had to pay privately for orthotics and wheelchair due to lack of community services.
Due urodynamics (X-ray to measure bladder function) 2 years ago however not considered a priority.
Attends urology privately due to public waiting times.
Home-maintenance
Redline