SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Waiting since 2019 for urology surgery in Children's Health Ireland Crumlin.
Turning 18 this year, the family's biggest fear is he will be
discharged out of the system before he receives his surgery
Waited so long for spinal fusion surgery in Children's Health Ireland Temple Street he was left with a 70 degree curve post operatively.
No access to the Spina bifida multidisciplinary (MDT) clinic.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group