SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
  • Home-maintenance

Cailín R

  • Waiting over a year for orthopaedic surgery has been given date twice and cancelled with less than 24 hours notice both times.
  • ​Extremely distressing for family and child to be prepped for surgery and it cancelled.
  • Still waiting to hear of next "surgical date".
  • Recently attended the spina bifida clinic after a 2 year wait.
  • Waiting 18 months for a respiratory appointment.
  • ​Enjoys reading, playing with her dolls and playing basketball.
  • She is also an honorary guard with the Little Blue Heroes.​


Spina Bifida & Hydrocephalus Paediatric Advocacy Group ​©
Privacy Policy
  • Home-maintenance