SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Waiting over a year for orthopaedic surgery has been given date twice and cancelled with less than 24 hours notice both times.
Extremely distressing for family and child to be prepped for surgery and it cancelled.
Still waiting to hear of next "surgical date".
Recently attended the spina bifida clinic after a 2 year wait.
Waiting 18 months for a respiratory appointment.
Enjoys reading, playing with her dolls and playing basketball.
She is also an honorary guard with the Little Blue Heroes.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group