SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Rosie age 6 from Offaly

  • Waiting since September 2019 for major orthopedic surgery.
  • Recieved a surgery date for October 2021 which was cancelled last minute, eventually got a new date for January 2022 but was also cancelled.
  • Has developed scoliosis as a direct result of orthopedic surgery not being carried out in a timely manner.
  • Loves baking and has a smile that lights up any room​.
  • Rosie's mother has spoken extensively to the media of what is happening across Spina Bifida/Hydrocephalus services.
  • 'It is serious now' - Offaly girl waiting two years for essential operation,
  • ​Shinrone girl with deteriorating spina bifida condition waiting two years for essential operation
  • You can listen to Rosie's mother speaking on Midlands 103 FM by playing the audio file below.​
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