SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Jodie age 13 from Cork

  • Since 2019 Jodie has had 18 surgeries on her back. Her last surgery was 11 months ago. The wound on her back is still open. She requires urgent review by a specialist plastic surgeon to assess her for a skin graft.
  • Peg fed via her stomach, her mam has to change mini button herself.
  • Waiting for an urgent review by a Cardiologist .
  • Has no access to Spina bifida clinic multidisciplinary team (MDT) in Children's Health Ireland (CHI) Temple Street.
  • Waiting over a year and a half to see neurology in Cork University Hospital, despite having epilepsy.
  • Progressing Disability services offering no local support.
  • Waiting 2 years for 2 urology procedures.
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