SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Home-maintenance
Redline
Siobhán age 15 from Cork
Has never attended a Spina bifida multidisciplinary team (MDT) clinic.
Has had
many procedures and several surgeries on her feet over the years.
Has p
reviously had urology and spinal surgery.
Currently seen by a Paediatric neurologist every 1 to 2 years but won't be seen after August as she will be 16.
No transition plans in place for transfer to adult neurology services.
Attends multiple separate orthopaedic and urology clinics with little coordination between them.
Home-maintenance
Redline