SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Siobhán age 15 from Cork

  • Has never attended a Spina bifida multidisciplinary team (MDT) clinic.
  • Has had many procedures and several surgeries on her feet over the years.
  • Has previously had urology and spinal surgery.
  • Currently seen by a Paediatric neurologist every 1 to 2 years but won't be seen after August as she will be 16.
  • No transition plans in place for transfer to adult neurology services.
  • Attends multiple separate orthopaedic and urology clinics with little coordination between them.


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