SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Siobhán age 15 from Cork
Has never attended a Spina bifida multidisciplinary team (MDT) clinic.
many procedures and several surgeries on her feet over the years.
reviously had urology and spinal surgery.
Currently seen by a Paediatric neurologist every 1 to 2 years but won't be seen after August as she will be 16.
No transition plans in place for transfer to adult neurology services.
Attends multiple separate orthopaedic and urology clinics with little coordination between them.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group