SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Ryan from Waterford/Cork border

● Waited so long for spinal surgery bones protruded through his skin, this caused a major infection and he spent 6 months as an inpatient. After being discharged he spent a further 6 months having to attend outpatient appointments frequently to manage this.
● His mental health has been significantly affected, he has had months of extreme distress. This has taken a huge toll on not just Ryan but his entire family.


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