How you can help...
Lobby your local TDWhat is happening to our children is unacceptable. Lobby your local TD and/or Senator; advise them on your thoughts on the current level of care that children with Spina Bifida/Hydrocephalus are receiving.
All county councils & city councils have been asked to write to the Minister for Health, Stephen Donnelly, to execute a rapid response for our children. We have already been in contact with many TDs and senators, so they will be familiar with the issues surrounding the care of children with Spina Bifida/Hydrocephalus and what can be done to resolve this. You don't have to be an expert on the issues; the information is laid out clearly here on our website. All you need is a desire to help end the suffering of our children. Click here to find contact details for your local TD and Senator |
Connect with us on social mediaSpread the word about the campaign on social media to help bring about change for our #páistíinpain, using the hashtag #páistíinpain in your posts and connecting with is on the social channels below.
Or drop us an email
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I want to donate money to help these children
Good news! The money has already been donated by us their parents and the Irish nation through taxes. It is 'Not an issue of funding': says Taoiseach
The proactive surgical & medical care of these children cannot be purchased privately. It should and must be provided in a timely manner by the Irish Health system.
The proactive surgical & medical care of these children cannot be purchased privately. It should and must be provided in a timely manner by the Irish Health system.