SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Support & Resources

Where to source help

We recognise that some of the topics discussed during this conference may be distressing. If you need emotional support at any stage, please consider reaching out to one of the free, confidential services above. You are not alone — support is available.

Who should attend?

This conference is aimed at parents/guardians who face challenges in accessing care:
Specifically, parents/guardians of children currently under a Children’s Hospital care (or recently discharged) for:
  • Scoliosis
  • Spina Bifida and/or Hydrocephalus
  • Orthopaedic conditions
  • ​Paediatric Hip dysplasia care/surgery
 
This conference is for parents and guardians whose children are or have been under the care of a children's Hospital. 
It offers a space to share experiences, discuss challenges in accessing and navigating care, and explore ways to improve support for families. The focus is on constructive dialogue and positive change.
Due to the sensitive nature of discussions. This conference is not open to the general public.

📍 Location: O’Moore Suite, Midlands Park Hotel, Portlaoise
​Eircode R32 KV20
​The venue is close to Church Street Car Park & within walking distance of Portlaoise Train Station.
Hosted by
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Scoliosis Advocacy Network

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Spina Bifida & Hydrocephalus Paediatric Advocacy Group

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Malcomson Law - Experienced in Health Law & Patient Representation

Spina Bifida & Hydrocephalus Paediatric Advocacy Group ​©
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