SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Adam from Cork

  • What Adam and his family have endured through lack of care is highly distressing and cruel. There has been no review in to the failures in Adam's care, no communication to the family and no psychological support for Adam.
  • Waited 4 years for scoliosis surgery.
  • Adam has serious post-operative complications, possibly caused by the delay in his care.
  • Due to the delay in treatment, Adam now needs additional surgeries to his legs and feet.
  • He has not been seen by a Urologist ​in 4 years.
  • Adam currently has no wheelchair.
  • You can listen to Adam's mother telling their story on RTÉ Today with Claire Byrne here in Oct 2021 & an update in Nov 2021
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