SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Has not been seen in the Spina bifida multidisciplinary team (MDT) clinic in 3 years.
Presented to an Emergency Department within Children's Health Ireland (CHI) in agony.
His legs had to be put in casts for 6 weeks to avoid infection.
Waited a month and a half for his legs to heal in order to have orthopaedic surgery on his feet.
No psychological support was offered after enduring 6 weeks of horrendous pain.
Has not been seen in 4 years by a consultant Urologist.
In primary school and adores his brothers.
Enjoys playing video games and doing arts and crafts.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group