SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Seán age 11 from Kildare

  • ​Waiting 3 years for "annual" Spina bifida multidisciplinary team (MDT) clinic.
  • Has not been seen in by a consultant Urologist in 3 years. 
  • Had leg sores and pain while waiting for orthopaedic foot surgery. 
  • Loves Minecraft, coding, maths, science and BBC programme Pointless. 
  • Seán's mother talked on local radio on the issue Due To Vital Orthopaedic Surgery Waiting Times Some Children With Spina Bifida Becoming "Deformed & Disfigured", 
Spina Bifida & Hydrocephalus Paediatric Advocacy Group ​©
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