Has spent the majority of his life on waiting lists within the Irish health system.
No access to Spina bifida multidisciplinary team (MDT) clinic in Children's Health Ireland (CHI) at Temple Street, despite repeated requests from his mother.
Waited 2.5 years for spinal assessment for scoliosis. Unfortunately, during this time period his scoliosis progressed and is now inoperable .
Acquired a life altering brain injury since shunt revision surgery in 2019.
Waited 2 years to access paediatric rehabilitation unit in the National Rehabilitation Hospital (NRH).
His care is frequently split across 4 hospitals, due to not having access to the Spina bifida MDT.
Currently transitioning to adult services with no support from CHI.