SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Buachaill O age 5


  • Waited 2.5 years for "annual" Spina bifida multidisciplinary team (MDT) clinic.
  • Was put on waiting list for orthopaedic surgery at last Spina bifida clinic. No date given for Surgery.
  • Waited 23 months for a sleep study in Children's Health Ireland (CHI) Crumlin.​
  • Had to pay privately for kidney ultrasounds as had no access to scans at CHI Hospitals.
  • No access to local Physiotherapy since 2020.
  • Loves watching sport and listening to music.





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