SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Buachaill O age 5
Waited 2.5 years for "annual" Spina bifida multidisciplinary team (MDT) clinic.
Was put on waiting list for orthopaedic surgery at last Spina bifida clinic. No date given for Surgery.
Waited 23 months for a sleep study in Children's Health Ireland (CHI) Crumlin.
Had to pay privately for kidney ultrasounds as had no access to scans at CHI Hospitals.
No access to local Physiotherapy since 2020.
Loves watching sport and listening to music.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group