SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Lexi age 11

  • ​Waiting 2 years for Orthopaedic ​surgery on her feet.
  • Lexi's feet are deteriorating, she needs urgent Orthopaedic surgery to correct them. Due to this deterioration in her feet her AFOs (legs splints) no longer fit correctly.
  • Had 2 recent Orthopaedic appointments cancelled one in October 2021 and one in Dec 2021. Appointment received for February 2022.
  • ​Waited 10 years for ophthalmology review finally seen in 2020, has not been seen since.​
  • Average wait of 2 years to be seen at the "annual" Spina bifida multidisciplinary team (MDT) clinic.​
  • Lexi did not have her own wheelchair for her first day of school. One had to be borrowed from therapy store until she received her own one.​
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