SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Lexi age 11
Waiting 2 years for Orthopaedic surgery on her feet.
Lexi's feet are deteriorating, she needs urgent Orthopaedic surgery to correct them. Due to this deterioration in her feet her AFOs (legs splints) no longer fit correctly.
Had 2 recent Orthopaedic appointments cancelled one in October 2021 and one in Dec 2021. Appointment received for February 2022.
Waited 10 years for ophthalmology review finally seen in 2020, has not been seen since.
Average wait of 2 years to be seen at the "annual" Spina bifida multidisciplinary team (MDT) clinic.
Lexi did not have her own wheelchair for her first day of school. One had to be borrowed from therapy store until she received her own one.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group