SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Alicia age 11 from Tipperary

  • Waiting for surgery to correct the knuckle (bony protrusion) on her back where her birth lesion is. This means Alicia can not sit comfortably in her wheelchair and this is causing further deterioration of her spine. She is also waiting for delivery of a chest strap to hold her in a more optimal position. 
  • Waiting 2 years for scoliosis surgery.
  • Outgrew her wheelchair 3 years ago and funding for same has repeatedly been refused until unscheduled scoliosis surgery is completed.
  • Loves arts and crafts.


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