SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
Diagnosed in 2020 with tethered spinal cord, she is experiencing gait deterioration and foot turning inwards due to nerve damage.
Unable to obtain surgery in Ireland due to waiting lists and her symptoms are progressively getting worse.
Had surgery completed privately in Great Ormond Street Hospital London to prevent further bladder and mobility deterioration.
Will require orthopaedic surgery to correct foot drop and foot turning in.
No access to HSE Orthopaedic consultant in Ireland.
Spina Bifida & Hydrocephalus Paediatric Advocacy Group