SPINA BIFIDA & HYDROCEPHALUS PAEDIATRIC ADVOCACY GROUP
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Cailín E

  • ​Diagnosed in 2020 with tethered spinal cord, she is experiencing gait deterioration and foot turning inwards due to nerve damage.
  • Unable to obtain surgery in Ireland due to waiting lists and her symptoms are progressively getting worse.
  • Had surgery completed privately in Great Ormond Street Hospital London to prevent further bladder and mobility deterioration.
  • Will require orthopaedic surgery to correct foot drop and foot turning in.
  • No access to HSE Orthopaedic consultant in Ireland.
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